Tova was born with a rare skin disease called junctional epidermolysis bullosa, it cause her skin and internal organs to be extremely fragile and weak! I added a photo on this post of a great explanation of her disease! At this time there is no cure for this disease! Despite her disease she’s still a very happy baby who lives to eat, sleep, play and she learns a lot from @Ms Rachel like sign language:) #junctionalepidermolysisbullosa #family #famliytime #awareness #ebawarness #findacure #findacu
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Ewan has a very rare skin disease called Epidermolysis Bullosa (also known as EB or the Butterfly Disease). His skin is incredibly fragile - blistering or tearing easily at the slightest bit of friction. Ewan’s bandage changes was something that we had to get used to quite quickly after we left the hospital. And we had to figure out ways to keep him calm, because it could be quite painful. But he’s been a strong little guy from the start! 🤍 #epidermolysisbullosa #butterflydisease #ebawareness #
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