Bulbar als - ALS Support Community
WEBJan 28, 2024. #1. MJR, I am a patient of ALS (PALS) with Bulbar-onset ALS. I was diagnosed in August 2023. My first symptoms showed up in January 2023. I do not think I’ve had any impacts on mental capacity, memory, etc. (I’m 57 years old.) My dexterity and general muscle control has not demished really. I take ‘longer’ to eat than I ...
Bulbar onset, developing quickly | ALS Support Community
WEBMay 24, 2020 — ALS generally has 3 main ‘starting’ points in the body, so some of the anticipatory planning will revolve around what parts of the body are most likely, or obviously failing first. These are – bulbar onset that starts with speech and swallowing, arm and leg onset. One of the biggest issues we... www.alsforums.com.
bulbar - ALS Support Community
WEBApr 9, 2024 — Terrified of bulbar. First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
bulbar ALS - ALS Support Community
WEBSep 28, 2020 — I was dx bulbar onset ALS in 3/2017. Limb involvement occurred within weeks in my hand. Presently (3.5 yrs later) my speech is indecipherable to most, trouble swallowing,severely limited use of hands and arms. I cannot walk and use PWC. I can stand for few secs with support. 1.
Bulbar??? - ALS Support Community
WEBUK. Jan 13, 2024. #1. Hi everyone, I'm 38, M and in decent shape. I'm posting here because since September I've been having weird symptoms. I have widespread random twitches, VERY bad muscle pain which is also widespread. My tongue is Stiff and I have severe Pain in the back of my neck and pain under my Jaw along with one sided Migraines.
New bulbar issues - ALS Support Community
WEBApr 15, 2023 — Feb 5, 2024. #2. You don't say that anyone but you sees all these manifestations (reduced swallowing, speech) of bulbar impairment, which is a hallmark of bulbar onset, so the answer is no. I am not even going to get into the order of symptoms because what you are calling fascics could be anything, including, often, the jitteriness of …
How does bulbar ALS progress? | ALS Support Community
WEBOct 21, 2008. #1. I have been having seemingly increasing speech and swallowing problems the past few weeks, along with some intermittent slurring, feeling of tongue weakness and feeling tongue twitches. Yesterday a rheumatologist (examining me for other things) agreed that my tongue has less tissue and more grooved on Left side and that …
Pseudobulbar Palsy vs Bulbar Palsy | ALS Support Community
WEBJan 7, 2007 — There is a lot of difference between bulbar and pseudobulbar palsy. Let me list them hereunder. 1. Pseudobulbar palsy is an upper motor neuron type of lesion affecting the corticobulbar fibres, that is, fibres connecting cerebral cortex to cranial nerve nuclei in the bulb aka medulla.
Bulbar als and odd symptoms | ALS Support Community
WEBJan 23, 2024 — Bulbar onset ALS tends to progress faster and FTD symptoms may mean that you need to be the decision-maker. I’m sorry that you and your husband are on this difficult journey - btdt, it sucks. We ultimately chose a different path than many others choose, but it was the path that was most aligned with my husband’s values surrounding …
Mother diagnosed with Progressive Bulbar Palsy, what can I do?
WEBJun 11, 2020 — Unfortunately, it will not go away. But the rate of progression varies. If she has no limb issues after 2y of speech deficits, she may be in the subgroup (isolated bulbar palsy) that lives somewhat longer and has breathing problems later in the course. She may want to consider taking riluzole in consultation with her doctor.